I feel that I should begin by thanking everyone for their love and support. We've felt it and it has helped a lot. Ezra is quite a joy even with the extra stress that he brings that other kids might not. As an update we thought we would let you know how things went at Ezra's appointment today.
In the last the last week Ezra was diagnosed with a heart murmur, plagiocephaly, brachycephaly, and torticollis, and the doctors were worried about him not rolling or sitting up and constriction of his anterior fontanelle, much of which has been covered in a previous post. Before you begin worrying, please remember the previous post (or go read it) and let me explain. Today was actually quite relieving. Ezra has had his heart heavily monitored. He does not have a heart murmur. The plagiocephaly and brachycephaly is a fancy way of saying his head is funny shaped from sleeping on his back, often with his head to one side.
Ezra looking good in a his backwards kimono
Today's we saw a neurologist (another one to add to Ezra's list) and his new diagnosis was torticollis. The doctor said this because he slightly prefers turning his head towards the right. Basically his neck muscle on one side is a little stronger. He showed us some exercises to do to help him even out. The good news is that he did not order an MRI. He was not concerned about the size of his soft spot (fontanelle) and he felt that his development and reflexes were mostly on track. He agreed that we should do the early intervention physical therapy to help with rolling over and sitting up and also that the PT would help with torticollis. He did, however, recommend that we should get Ezra the helmet he was previously prescribed, but we're sticking with our pediatrician and feel that he has gone through enough. I hope it doesn't make us bad parents that we don't care that his head will be a little flat. The neurologist also ordered a neck X ray to see if there were any bone abnormalities causing torticollis, but we already heard from our pediatrician that everything looked normal. Hooray for Ezra!!!
Ezra looking good in a his backwards kimono
6 comments:
Hooray for Ezra is right! I don't think you are bad parents for not wanting him to have a helmet. His head will round itself out soon enough. He sure seems to be a cute, happy boy!
YEAH!! Ezra is so tough and I love the picture. I know I keep saying it, but Ezra has the greatest smile...so big and happy. I don't think you are bad parents and I think Ezra's smile proves it.
We are counting down the days until July!
Yay! That is so good. He is one tough little guy and his parents are too!
so glad he's ok!!
I have thought about you all week wondering how the MRI went so I am glad to hear he did not get one after all.
Soni's little girl had a helmet and she said they went through so much torment from people that she would not do it all over again. We certainly do not have the flat-head problem with Jett he will only sleep on his belly.
I love the July countdown on the sidebar! We can hardly wait to meet the little Ez! ;)
Yay! I don't blame you on the helmet - that's no fun at all.
Post a Comment